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Talipes Together | Club Foot Support Network

sheena
  • Female
  • Edmonton Alberta
  • Canada
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  • Samantha J Pownall
  • Aoife

sheena's Discussions

My baby boy is here!

Started this discussion. Last reply by Mia Barry Feb 22. 1 Reply

Well after a roller coaster ride pregnancy full of worry, my baby boy Liam is here and perfectly healthy! His little feet r clubbed and he's already in his second set of casts. The casts don't bother…Continue

Going to be a mommy in less then 3 days!

Started this discussion. Last reply by Mia Barry Jan 30. 1 Reply

I found out my baby will have bilateral club feet at my 20 week ultrasound. I am finally going to meet my little boy or girl this week as I am being induced on Tuesday! He or she will hopefully be…Continue

Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.

Started this discussion. Last reply by jay duncan Apr 13. 5 Replies

I am 25 from Canada and pregnant with my first baby. My pregnancy has been perfect and I have been so happy being pregnant! Every little kick and milestone makes me smile. Well I went into my appt…Continue

 

sheena's Page

Latest Activity

jay duncan replied to sheena's discussion Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.
"Hi I have just read ur post!  Im guessing u have had ur little bundle already!! as it was posted last yr! I was just lookin for an update as I my situation right now is very similar to you then.  My child has been diagnosed with…"
Apr 13
Mia Barry replied to sheena's discussion My baby boy is here!
"Hi Sheena and a huge congratulations on the birth of Liam!! You must be thrilled - and he's in second casts allready - well done! It is amazing how time flies once the baby arrives. We would love if you wanted to share a photo of Liam, but the…"
Feb 22
sheena posted a discussion

My baby boy is here!

Well after a roller coaster ride pregnancy full of worry, my baby boy Liam is here and perfectly healthy! His little feet r clubbed and he's already in his second set of casts. The casts don't bother him at all! I was so worried about him during my whole pregnancy since I found out he will have clubbed feet, but now that he is here I am happier then ever! He is perfect and handsome! I will post pictures of his feet soon! Does anyone know if this website keeps the pictures private or could they…See More
Feb 20
Mia Barry replied to sheena's discussion Going to be a mommy in less then 3 days!
"Wow - how exciting! I'll be sure to keep fingers crossed for you and look forward to welcoming your son or daughter to Talipes Together! Best of luck - it is an amazing experience :)  Mia x"
Jan 30
sheena posted a discussion

Going to be a mommy in less then 3 days!

I found out my baby will have bilateral club feet at my 20 week ultrasound. I am finally going to meet my little boy or girl this week as I am being induced on Tuesday! He or she will hopefully be here by Wednesday if all goes as planned! Please say a little prayer for us as this is our first baby and we are a little nervous amongst our excitement! Thanks and I'll update once our little one is here!! Xo
Jan 30
Samantha J Pownall replied to sheena's discussion Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.
"Hello, bet you cant wait to meet your baby!! Mya is doing fantastic she is now 6 mnths old, she is in boots and bar for 12hrs at night, she has settled into them very well, we have had a few bad nights but all worth it!!!   Labor and birth…"
Jan 22
Valerie McTaggart replied to sheena's discussion Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.
"Hi I have a 4.5 year old girl with talipes on left foot if u want any info let me know. But my girl runs, walks, jumps and does ballet no problem. She was treated By the Ponsetti method but any info you want please mail"
Jan 21
sheena replied to sheena's discussion Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.
"Hi Samantha! Sorry for writing back so late, I haven't been on this site much lately.. trying to get ready for baby! He/she is due in 27 days and I have been busy getting ready for their arrival!  How is your little May doing? I am…"
Jan 21
sheena and Samantha J Pownall are now friends
Jan 21
Samantha J Pownall replied to sheena's discussion Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.
"Hello Sheena,   I would like to offer you support, advice anything i can help you with!!, Ifound out at 20week scan that Mya will have Talipes (club foot) At Birth by C-section she only had one foot that was bad, She is now in 4th week of…"
Oct 5, 2011
sheena and Aoife are now friends
Oct 5, 2011
Mia Barry left a comment for sheena
"Hi again,   The only times I noticed pain was when they apply the "bend" to the foot when they put on new plaster casts. Louis always cried as they have to bend the foot and put a bit of pressure on for about 20 seconds until the cast…"
Oct 2, 2011
Mia Barry left a comment for sheena
"Hi Sheena!   Firstly - you are not alone feeling all this! - We all go through it in some degree or another!    There is NO medical proven link between downs and club foot! Most babies with this condition have it isolated and are…"
Sep 30, 2011
sheena replied to Tracy Griffin's discussion Just want to give you all hope who are starting out
"Thanks for sharing. I just found out a few days ago at my 19 week ultra sound  and I am so sad and shocked. It is nice to know that things turn out ok."
Sep 30, 2011
sheena posted a discussion

Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.

I am 25 from Canada and pregnant with my first baby. My pregnancy has been perfect and I have been so happy being pregnant! Every little kick and milestone makes me smile. Well I went into my appt after my 19 week ultrasound glowing and was expecting more and more great news! Well thats not what I got. The doctor sat me down and told me my baby has club feet. The words hit me like a ton of bricks. Between the tears I had the worst of the worst running through my mind. The words "Club Feet" made…See More
Sep 30, 2011
sheena updated their profile
Sep 29, 2011

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At 19:19 on October 2, 2011, Mia Barry said…

Hi again,

 

The only times I noticed pain was when they apply the "bend" to the foot when they put on new plaster casts. Louis always cried as they have to bend the foot and put a bit of pressure on for about 20 seconds until the cast sets. It only lasts for seconds and then he was happy again! Many parents reports that their baby shows no discomfort during the plaster application, some even sleep through! I just told myself - what is the alternative? A life walking on his ankles? I take 20 seconds of crying any day!

The other stage is the boots and bar and this is when parents tend to be a bit worried as baby is a little older and he/she are starting to notice things around themselves more so cries a bit more. We then panic un-necessarialy, in my opinion, thinking our baby is in pain. The baby is just behaving like any other baby :) 

 

I was terrified before Louis was born as pictures of boots and bars looks a bit heavy and old fashioned and sore - they are not! You and the baby will get used to them so fast and before you know it, they come off during the day and only stay on at night. Now that Louis is 2 and running around I do not ever see him in pain. It is great!

 

I have not yet noticed the "thinner calf" thing. I understand that this will probably be the case when he gets a little older, but it is only cosmetic in that case. We joke, me and my husband, as he has really big calves so we say that Louis will turn out to look normal! 

 

You don't really bathe the baby when he/she wears casts. It is a lot of hassle and not worth it if the cast get wet. As they are changed once a week you can usually give the baby a good bath when they come off. Otherwise I used to wipe Louis down each day with wet, warm cotton wool. That's enough as little babies don't tend to get dirty, except for a bit of sick here and there but cotton wool is great.

 

So again, try not to worry. What will be will be, and you will settle into treatment fast and before you know it your baby will be walking and you won't even know it had/has talipes!

 

Mia x

At 12:59 on September 30, 2011, Mia Barry said…

Hi Sheena!

 

Firstly - you are not alone feeling all this! - We all go through it in some degree or another! 

 

There is NO medical proven link between downs and club foot! Most babies with this condition have it isolated and are perfect in every other way. There is of course a chance a baby has downs, but that is just as small as any baby. It is a hard decision to make about the test - would it change things for you? I was never offered this test as here in ireland it is not seen to be linked with other issues. They do check the spine carefully during the scans, but that's it (in my experience). 

 

Please try and not to worry - the VAST majority of all clubfoot babies are treated with 99% success rate with the Ponseti method (plaster casts and boots and bar). I cried a lot too when i found out, but then I suddenly stopped. I said to myself, look this baby has club feet, it is treatable and lets enjoy the pregnancy! So I did - it was so lovely and when Louis was born the immense joy you feel is the same as with the birth of any baby!

 

I also felt a little apprehensive about what people would think when I told them, but I decided to tell everyone from the moment I found out. There is nothing to be afraid off and you will be surprised how many people will suddenly say - oh, I had that as a baby, or they know someone with the condition. It is a fairly common thing! The word "club foot" is not very pretty I suppose, so use Talipes until you get used to it :)

 

Try not to worry, really, your baby will most likely only have "funny feet" that will be rectified before he/she can walk! Trust me, you will have many other things to worry about then like drawing on your walls or running out! 

 

Enjoy, relax and please feel free to ask any questions you may have!

 

Mia

At 19:22 on September 29, 2011, Mia Barry said…

Hi Sheena!

Welcome to Talipes Together!

I hope that you will find this site useful and please feel free to participate as much or as little as you like. I would suggest that you introduce yourself and tell us a little about what brings you here, if you want. Even if you do not want to discuss anything further, your story may give useful information and/or support to others. Just go to Forum, and then click on Introductions from the drop down menu and then "add a discussion".

 

Please do not hesitate to contact me or any other members if you think we may be able to help in any way. I am also very keen to get any ideas on how I can make this website better, more informative or just to add something fun!

 

Again, welcome!

Mia

Creator of Talipes Together

 
 
 

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