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Audrey Twyford's Discussions

Alex's operation

Started this discussion. Last reply by Mia Barry Aug 15, 2010. 1 Reply

Finally, we are a on the other side of Alex's first operation in Crumlin and all went well. After it being postponed for 2 weeks we were prepared for another postponement on the morning when we rang…Continue

New here but nearly 12 years into the treatment for talipes

Started this discussion. Last reply by Audrey Twyford Jul 3, 2010. 9 Replies

Hi, my name is Audrey and mum to Alex (11½), Freya (5½) and Aoibhinn (3½).  Alex was born in July 1998 with bilateral talipes which didn't come as a shock as I had seen a program the week before on…Continue

 

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Audrey Twyford posted a blog post

Alex's Story Part 8

We are now a week on from Alex's operation... Yes, you heard right, it went ahead.  The procedure used to get her in the door was a little different and probably a little out of order but it worked in the end without cancellation.We had been sent a confirmation letter for the 30th November but it was for day surgery in the day ward so I phoned admissions to query this as it was not a day case and they told me that she was booked in this way to get her in the door, she would be moved from day…See More
Dec 8, 2011
Audrey Twyford commented on Mia Barry's blog post Louis’ story 28 “Dr Check-up at 2 years old”
"Fantastic! Well done Louis (and Mia). I heard in Crumlin last week that Mr Stephen's had retired (he performed Alex's last op in Temple Street. The consultant told me that a lot of his patients had been transferred to Crumlin. Enjoy the…"
Dec 7, 2011
Mia Barry commented on Audrey Twyford's blog post Alex's Story Part 7
"Ah yes, don't you just love this system.... I will, as always, keep my finders firmly crossed for you and hopefully you have more to celebrate than just Christmas!  Mia x"
Oct 20, 2011
Audrey Twyford posted a blog post

Alex's Story Part 7

It's been such a long haul for us all but hopefully it's about to come to an end soon. Since the end of April this year, after Alex's op to remove the veruca, the follow up appointment and the first phone call to get her back on the list, it's been a battle to get any information from anyone in Crumlin, no matter who I spoke to or what department I was put through to.  Since being told by Ms Kelly's registrar at the end of June that Alex was penciled in for the end of July, we have heard…See More
Oct 19, 2011
Audrey Twyford and noreen ward are now friends
Oct 19, 2011
Audrey Twyford commented on Audrey Twyford's blog post Alex's Story Part 6
"Thanks Mia, it's hard going alright.  We have been let down by the system hugely over the passed 3 years but we'll battle on.  I'm just so sorry I didn't go to Belgium last year where we had a chance to get it done and…"
Aug 16, 2011
Mia Barry commented on Audrey Twyford's blog post Alex's Story Part 6
"Hi Audrey! It is lovely to hear from you, but very dissapointing for you all again.... I'm thinking of you and wishing you all the best! Mia x"
Aug 15, 2011
Audrey Twyford posted a blog post

Alex's Story Part 6

13/08/11 - Update Still no word from the hospital and yet another summer wasted.  We cancelled all plans of a holiday this year and the hospital told me that Alex was top of the list for a cancellation and was penciled in for the end of July but we never heard back and here we are in the middle of August and as and from 2 weeks ago Ms Kelly is on holidays until September so no chance of even a date until her return meaning the waiting and cancellations and operation and physio will eat into yet…See More
Aug 14, 2011
Audrey Twyford commented on Audrey Twyford's blog post Alex's Story Part 6
"Thanks Mia, she's doing ok.  It's me that's going around the bend with it all rather than her.   She had a great time at the disco so it certainly isn't changing the normal progress of teenage life.   Talk…"
Jun 7, 2011
Mia Barry commented on Audrey Twyford's blog post Alex's Story Part 6
"Hi Audrey! So the story continues...Arrrgghh! Great that she keeps the spirit up and hope she had a great time at the Disco :-) Another mother added a discussion the other day, Grace, have a look as her daughter is also going through surgery in…"
Jun 7, 2011
Audrey Twyford posted a blog post

Alex's Story Part 6

13/08/11 - Update Still no word from the hospital and yet another summer wasted.  We cancelled all plans of a holiday this year and the hospital told me that Alex was top of the list for a cancellation and was penciled in for the end of July but we never heard back and here we are in the middle of August and as and from 2 weeks ago Ms Kelly is on holidays until September so no chance of even a date until her return meaning the waiting and cancellations and operation and physio will eat into yet…See More
Jun 1, 2011
Audrey Twyford commented on Mia Barry's video
Thumbnail

Louis with clubfoot walking Talipes Together

"He's such a little cutie and look at those feet... Perfect!  You must be so proud..."
Apr 26, 2011
Audrey Twyford liked Mia Barry's video
Apr 26, 2011
Audrey Twyford commented on Audrey Twyford's blog post Alex's Story Part 5
"Thanks Mia. We're getting used to the disappointment now, it's happened so many times. Alex is at the stage now where she just doesn't worry about it because it's more than likely not going to happen anyway.  We just want it…"
Mar 29, 2011
Mia Barry commented on Audrey Twyford's blog post Alex's Story Part 5
"Oh Audrey... Your story is neverending. You must be soooooo tired of it all. And poor Alex! Lots of ups and downs. You will be experts on this once it is finally over! I really feel for you and I will continue to keep my fingers crossed for you and…"
Mar 29, 2011
Audrey Twyford commented on Audrey Twyford's blog post Alex's Story Part 5
"There is a serious positive to what happened last week and Alex is not complaining... She was able to go to her first disco on Friday night, a party in Wicklow on Saturday and Katy Perry last night so all wasn't lost."
Mar 29, 2011

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Audrey Twyford's Blog

Alex's Story Part 8

Posted on December 7, 2011 at 20:54 0 Comments

We are now a week on from Alex's operation... Yes, you heard right, it went ahead.  The procedure used to get her in the door was a little different and probably a little out of order but it worked in the end without cancellation.

We had been sent a confirmation letter for the 30th November but it was for day surgery in the day ward so I phoned admissions to query this as it was not a day case and they told me that she was booked in this way to get her in the door, she would…

Continue

Alex's Story Part 7

Posted on October 19, 2011 at 18:36 1 Comment

It's been such a long haul for us all but hopefully it's about to come to an end soon.

 

Since the end of April this year, after Alex's op to remove the veruca, the follow up appointment and the first phone call to get her back on the list, it's been a battle to get any information from anyone in Crumlin, no matter who I spoke to or what department I was put through to.  Since being told by Ms Kelly's registrar at the end of June that Alex was penciled in for the end of July,…

Continue

Alex's Story Part 6

Posted on June 1, 2011 at 19:30 4 Comments

13/08/11 - Update

 

Still no word from the hospital and yet another summer wasted.  We cancelled all plans of a holiday this year and the hospital told me that Alex was top of the list for a cancellation and was penciled in for the end of July but we never heard back and here we are in the middle of August and as and from 2 weeks ago Ms Kelly is on holidays until September so no chance of even a date until her return meaning the waiting and…

Continue

Alex's Story Part 5

Posted on March 29, 2011 at 0:33 3 Comments

28th March 2011

 

Hi all, hope everyone is well.  We were all set for the 21st March as planned but unfortunately it didn't go quite as well as we had hoped...

 

The story begins:

After Alex's first operation last July, she started physio sessions in Crumlin, once to twice a week.  All went well and we were happy with the outcome.  We never thought at the time that walking around the floor in bear feet would cause a problem but it did as she developed a…

Continue

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