Talipes Together | Club Foot Support Network

Still waiting for the initial shock to wear off. Just found out from 19 wk u/s about club feet.

I am 25 from Canada and pregnant with my first baby. My pregnancy has been perfect and I have been so happy being pregnant! Every little kick and milestone makes me smile. Well I went into my appt after my 19 week ultrasound glowing and was expecting more and more great news! Well thats not what I got. The doctor sat me down and told me my baby has club feet. The words hit me like a ton of bricks. Between the tears I had the worst of the worst running through my mind. The words "Club Feet" made me think that the feet are deformed.. no toes.. never walk.. all the worst because this term was new to my ears.

As the doctor continued talking, it went from bad to worse... he mentioned genetic testing and how club feet can be associated with down syndrome or other chromosome disabilities. I felt like I was going to throw up. I am very bad with bad news, especially when it is unexpected... and in the beginning of my pregnancy genetic testing was on my mind because I work full time with special needs children. We decided not to get any testing and went on with our happy pregnancy. Now I am being referred to a perinatal clinic and they are going to offer me an amnio. I don't want it and made it clear. But my doctor said that I can get maternal screening testing. This will show my percentage of having a child with a disability.

I guess my biggest worry is if my baby will have down syndrome. The ultra sound showed that it is an isolated issues of club feet and no other signs point to downs. (im getting a second u/s on tuesday and am talking to a genetic counselor..im so scared. )

Can anyone out there let me know about their experience and how let came to peace with the news that your baby has club feet. Did the doctor recommend genetic counseling/testing like mine? I guess I just need people to talk to about this. we decided not to tell people... only immediate family and a few close friends.

Thanks

Sheena

xoxo

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Permalink Reply by Samantha J Pownall on October 5, 2011 at 22:43

Hello Sheena,

I would like to offer you support, advice anything i can help you with!!,

Ifound out at 20week scan that Mya will have Talipes (club foot)

At Birth by C-section she only had one foot that was bad,

She is now in 4th week of boots & bar,

If you would like me to tell you full story from 20week scan Email me @ sjpownall@ymail,com

It is not as bad as you think, it felt like the world was ending when i was told and did't have any one to talk 2, so this is why im offering my hand,

Samantha & Mya xx

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Permalink Reply by sheena on January 21, 2012 at 1:48

Hi Samantha! Sorry for writing back so late, I haven't been on this site much lately.. trying to get ready for baby! He/she is due in 27 days and I have been busy getting ready for their arrival!

How is your little May doing? I am getting a little nervous about labor and delivery but it will all be worth it in the end! I will also be so relieved to know that my baby is here and healthy! I appreciate your support and i will update you on the birth of my baby!!

Sheena

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Permalink Reply by Valerie McTaggart on January 21, 2012 at 21:59

Hi I have a 4.5 year old girl with talipes on left foot if u want any info let me know. But my girl runs, walks, jumps and does ballet no problem. She was treated By the Ponsetti method but any info you want please mail

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Permalink Reply by Samantha J Pownall on January 22, 2012 at 13:59

Hello, bet you cant wait to meet your baby!! Mya is doing fantastic she is now 6 mnths old, she is in boots and bar for 12hrs at night, she has settled into them very well, we have had a few bad nights but all worth it!!!

Labor and birth is worth all the pains :) all tho my 1st I had a very bad birth so i had a c-section with Mya, Good luck and im sure all will go well xx

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Permalink Reply by jay duncan on April 13, 2012 at 23:23

I have just read ur post! Im guessing u have had ur little bundle already!! as it was posted last yr!

I was just lookin for an update as I my situation right now is very similar to you then. My child has been diagnosed with bilateral talipies on ultrasound. They are confident it is an isolated issue also. but offered no other genetic testing or amnio at all.

I would be really grateful if you could let me know how everything turned out for you and your little one as I have the same concerns as u right now!!