Talipes Together

Talipes Together | Club Foot Support Network

hi i am new me and my wife have a daughter with talipes

  

    hi everyone 

                         our daughter born on the 8.12.11 (9.lb6oz)   has talipes in both feet  .  we have been waiting few  weeks now for a doctor to look at her  . then last  wednesday  . we just started the  ponseti treatment at doncaster hospital . the pots went on   she was real good till 2 a.m in the mornin  screaming the house down  . we  got her to worksop hospital  where the  nurses  on a/e  was thinking  wot do we  do after 2 hours  we got to see a doctor who said  her pots had been fitted too tight  and he cut the tops off  with  that our little girl fell back asleep .  doctor  said we would get some liquid paracetomll  for her another hour later a nurse turns up with it . as two new parents  with a baby  with  talipes  . i am so  shocked how they treated us  .i will never take my little girl to that place again if she has problems with her pots  . brian

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Hi Brian!

Welcome to Talipes Together!

I am so sorry to hear of your 1st encounter of the treatment of clubfoot. By your story it is clear that the hospital you speak of are NOT suitable trained/experienced in the Ponseti treatment. It must have been very scary. By pots, do you mean plaster casts?

Babies born with talipes are mostly in plaster casts by the end of week one of their life. Your daughter will not have suffered any effects by waiting a few weeks, but it does flag that they are not suitable trained in this treatment method. For the ponseti method, (which is amazing and brilliant in every way!), to work effectively it is worth your while to search for a good hospital that knows their stuff. Contact STEPS Charity (helpline 01925 750271) as they will have a list of these for you in the UK. It is worth travelling for this! It can be annoying in the beginning, but once the plaster treatment is over you will not need to go as regularly and you will thank your lucky stars you found a good Dr. In the long run your little girl will have less problems and you will sleep soundly at night :-) 

Perhaps there is other parents on this site around your area in the UK that can offer thoughts on hospitals? Anyone?

Please feel free to ask us any questions and do let us know how you get on over the next few weeks!

Mia

(creator of TT and mum to Louis 2 years born with bilateral congenital talipes)

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